Observing Patients Online Discussed in New Study Now Available at MarketPublishers.com

28 Oct 2011 • by Natalie Aster

LONDON – Data from online patient communities are being used to deepen understanding of the patient journey through illness, thus improving compliance, informing patient-centred endpoints for clinical trials and influencing reimbursement decisions. Such pools of patients are also being deployed to conduct direct-to-patient clinical research, where patients are recruited and monitored online, thus eliminating the need for clinical sites and investigators.

New market research study “Observing Patients Online: the changing face of research” prepared by FirstWord has been recently published by Market Publishers Ltd.

Report Details:

Title: Observing Patients Online: the changing face of research
Published: September, 2011
Pages: 47
Price: US$ 595

The study investigates the role online patient communities can play in observational research to enhance knowledge of how drugs are taken in the real world. It examines how the means to recruit patients online and track their experience via patient-reported outcome questionnaires and sensors in real-time has the potential to transform how observational studies are conducted.

Reports Contents:

EXECUTIVE SUMMARY

INTRODUCTION

Hierarchies of evidence
Changing technological climate

AN INTERCONNECTED WORLD

Recruitment online
Double-edged nature of engagement

PATIENT REGISTRIES

Product registries
Disease or condition registries
Strengths and weaknesses
Commercial registries
Ethical considerations
Commissioning online observational research
Departments involved
Projects commissioned

PATIENT-REPORTED OUTCOME MEASURES

Greater regulatory acceptance
More talk than action
Tracking healthcare
Tracking takes off in the UK
Blood pressure guidelines revised
New kinds of research
PROMs via text
More efficient healthcare delivery
Better compliance
Growing self-tracking community
Tracking for public health
Changes in asthma management
Data donorship

ONLINE PATIENT COMMUNITIES

More than ‘a pool of glimpses’
Lithium for ALS study
Mutually beneficial research
Crowdsourcing
Informing Phase III
UCB’s partnership with PatientsLikeMe
Are patients competent to report?
Patient-driven PROMs
Drivers of online observational studies

ACKNOWLEDGEMENTS

More new market research reports by the publisher can be found at FirstWord page.

CONTACTS

The Market Publishers, Ltd.  
Tanya Rezler
Tel: +44 208 144 6009
Fax: +44 207 900 3970
[email protected]
www.marketpublishers.com