New Report on Observing Patients Online by FirstWord

09 Jan 2012 • by Natalie Aster

For years, patients have shouted to be heard. But as online patient communities, chat rooms and forums have gained popularity and political clout their voices are resonating.

Already, data from online patient communities are being used to deepen understanding of the patient journey through illness, thus improving compliance, informing patient-centred endpoints for clinical trials and influencing reimbursement decisions. Such pools of patients are also being deployed to conduct direct-to-patient clinical research, where patients are recruited and monitored online, thus eliminating the need for clinical sites and investigators.

The new report “Observing Patients Online: the changing face of research” by FirstWord investigates the role online patient communities can play in observational research to enhance knowledge of how drugs are taken in the real world. Based on expert interviews, research and studies, the report examines how the means to recruit patients online and track their experience via patient-reported outcome questionnaires and sensors in real-time has the potential to transform how observational studies are conducted.

Report Details:

Observing Patients Online: the changing face of research
Published: Sep, 2011
Pages: 47
Price: US$ 595,00

Key features

  • Who takes the lead in commissioning observational research
  • Typical studies being commissioned online
  • How healthcare tracking is going mainstream
  • Case study of UCB’s partnership with PatientsLikeMe
  • Benefits of crowdsourcing: is it the new serendipity?
  • The drivers of online observational research


More information can be found in the report “Observing Patients Online: the changing face of research” by FirstWord.

To order the report or ask for sample pages contact


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Tanya Rezler
Tel: +44 208 144 6009
Fax: +44 207 900 3970